ATAXIA FUNCTIONALITY EVALUATION: DEVELOPMENT AN ICF CORE SET

Ribeiro ME1, Dubsky A1, Lemos F1,2,3
1FUNVIC, Pindamonhangaba, Brazil, 2INSPIRAR, Curitiba, Brazil, 3ABRAFIN, Rio de Janeiro, Brazil

Background: ICF Core Set can contribute to a better classification of the patients' disabilities and therefore to a better understanding of the case between the professional involved in the treatment, which allows all of them to trace the proper treatment following the main patients functional disabilities.

Purpose: Therefore, the goal of this study is to elaborate a Core Set with the main ICF codes, which demonstrate the main functional patients deficits, related to activity and participation levels.

Methods: Ten individuals with ataxic symptoms were selected, regardless of the etiology, sex and age. All individuals were evaluated by Scale for the Assessment and Rating of Ataxia (SARA), Barthel Index (BI) and Neurological Examination Score for Spinocerebellar Ataxia (NESSCA). After the evaluation, an analysis will be conducted according to ICF which domains of activity and participation are mostly impaired, formulating this way a Core Set for ataxia.

Results: Through the application of the evaluation scales it is possible to notice that the main domains impaired were: speaking (d330), 90% of the evaluated patients have some disturb in speaking; as well as maintaining a body position (d415).
In the walking domain (d450) only 10% of the patients don't have the gait preserved, 93% need some kind of equipment to move around (d465) and 90% present deficits in moving around excluding gait, for instance, climbing stairs (d455).
In the transferring oneself domain (d420) 50% of the patients are able to perform this task independently. Analyzing the motor coordination of superior and inferior extremities it is possible to notice that 70% present disability in this task with inferior extremities (d435) and 87% in tasks with fine hand use (d440).
Relating to Self-Care, 40% can't wash themselves (d510), 30% have difficulties in caring for body parts (d520). 35% of the evaluated patients have difficulties in
planning and carrying out the elimination of human waste, and cleaning themselves afterwards. (d530).
40% of the evaluated can't dress themselves on their own (d540) e 35% can't eat independently (d550).

Conclusion(s): We concluded that ICF Core Set reach the main ataxia problems guiding professionals to a better way to evaluated patients and to facilitated data archievement.

Implications: An ataxia Core Set elaboration can contribute in a meaningful way to the evaluation of these patients regarding the evolution of the patient's condition, therapy effectiveness and the communication of the professionals involved in the treatment.

Keywords: Ataxia, ICF, Core Set

Funding acknowledgements: To FUNVIC, PIndamonhangaba, São Paulo, Brazil, ABAHE (Hereditary Ataxia Brazilian Association and ABRAFIN (Neurological Physiotherapy Brazilian Association)

Topic: Outcome measurement; Neurology; Disability & rehabilitation

Ethics approval required: Yes
Institution: Taubaté University
Ethics committee: Taubaté University Ethics Committee
Ethics number: 85906418.0.0000.5501.


All authors, affiliations and abstracts have been published as submitted.

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