Lindquist ARR1, Marques JS1, Longo E2, Regalado ICR1, Galvão ÉRVP1, Maciel A1, Ferreira HNC2
1Federal University of Rio Grande do Norte, Department of Physical Therapy, Natal, Brazil, 2Faculty of Health Sciences of Trairí - UFRN, Department of Physical Therapy, Santa Cruz, Brazil
Background: Participation consists of the person´s involvement in daily life situations and it can be influenced by barriers and facilitators. For children, participation mainly consists of leisure activities. Rehabilitation process of disabled children generates the need to identify which barriers and facilitators interfere and offer better help in the social integration of patients. Although many studies have investigated parent/caregiver's perception, it is also important to know children´s perception.
Purpose: The goal of this study is to identify, in the perception of physically disabled children and their parents, which are the main barriers and facilitators for participation in leisure activities
Methods: Qualitative study, using with focus group. The sample consisted of 24 subjects (12 children and 12 parents), subdivided into four focal groups (2 of children and 2 of parents). All children underwent physiotherapy and had communication skills. For each group, the following guiding questions were presented: Does your child participate in leisure activities ?; What makes it difficult for your child to participate? What facilitates your child´s participation? For presentation of the questions in groups of children, the language was adapted using illustrated cards to facilitate discussions. The speeches were recorded and transcribed. Transcripts were analyzed by 3 independent judges. The Linking Rules method was adopted to determine the categories, based on the International Classification of Functioning, Disability and Health
Results: Children´s reports showed that the main barriers to participation in leisure activities are parental attitudes (fear of allowing children to participate in games and play) and school friends (excluding from play). The most mentioned facilitators were the better understanding and acceptance of colleagues. For parents, factors such as means of transportation, adapted physical spaces and community support were pointed both as barriers and facilitators, depending on whether or not they existed
Conclusion(s): Barriers and facilitators for participation in leisure activities were identified by both groups, however in a divergent way. This fact reinforces the importance in raising the patients´ own needs, making them more active members in their rehabilitation process
Implications: Understanding and identifying barriers and facilitators in the perspective of parents and also of children, will enable the physiotherapist to plan broader strategies in order to provide the most effective participation of their children in leisure activities
Keywords: International Classification of Functioning, Disab, Physiotherapy, Social Participation
Funding acknowledgements: The present work was supported by the Federal University of Rio Grande do Norte
Purpose: The goal of this study is to identify, in the perception of physically disabled children and their parents, which are the main barriers and facilitators for participation in leisure activities
Methods: Qualitative study, using with focus group. The sample consisted of 24 subjects (12 children and 12 parents), subdivided into four focal groups (2 of children and 2 of parents). All children underwent physiotherapy and had communication skills. For each group, the following guiding questions were presented: Does your child participate in leisure activities ?; What makes it difficult for your child to participate? What facilitates your child´s participation? For presentation of the questions in groups of children, the language was adapted using illustrated cards to facilitate discussions. The speeches were recorded and transcribed. Transcripts were analyzed by 3 independent judges. The Linking Rules method was adopted to determine the categories, based on the International Classification of Functioning, Disability and Health
Results: Children´s reports showed that the main barriers to participation in leisure activities are parental attitudes (fear of allowing children to participate in games and play) and school friends (excluding from play). The most mentioned facilitators were the better understanding and acceptance of colleagues. For parents, factors such as means of transportation, adapted physical spaces and community support were pointed both as barriers and facilitators, depending on whether or not they existed
Conclusion(s): Barriers and facilitators for participation in leisure activities were identified by both groups, however in a divergent way. This fact reinforces the importance in raising the patients´ own needs, making them more active members in their rehabilitation process
Implications: Understanding and identifying barriers and facilitators in the perspective of parents and also of children, will enable the physiotherapist to plan broader strategies in order to provide the most effective participation of their children in leisure activities
Keywords: International Classification of Functioning, Disab, Physiotherapy, Social Participation
Funding acknowledgements: The present work was supported by the Federal University of Rio Grande do Norte
Topic: Paediatrics; Disability & rehabilitation
Ethics approval required: Yes
Institution: UFRN
Ethics committee: Research Ethics Committee
Ethics number: CAAE-56193716.4.0000.5537
All authors, affiliations and abstracts have been published as submitted.
