DEVELOPMENT OF THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH INCONTINENCE ASSESSMENT FORM (ICF-IAF)

Kuhn M.1,2, Gass S.3, Radlinger L.3,4, Koehler B.1,2
1Zurich University of Applied Sciences, Health, Winterthur, Switzerland, 2Stadtspital Triemli, Therapy, Zurich, Switzerland, 3Bern University of Applied Sciences, Health, Bern, Switzerland, 4Bern University Hospital, Bern, Switzerland

Background: There is lack of questionnaires to evaluate urinary (UI) and faecal incontinence (FI) including all aspects of the bio-psycho-social model of the World Health Organisation (WHO).
Current questionnaires only focus on problems (barriers) and do not evaluate resources (positive influencing factors) for planning and evaluation of effective interventions in multi-professional settings.
Previous development of the ICF-IAF included the analysis of current disease specific questionnaires as well as Delphi-technique survey among 262 physiotherapists in 5 German speaking countries. Single persons' interviews with patients are ongoing.

Purpose: The purpose of this subproject was to identify problems (barriers) and resources (positive influencing factors) of affected people on the basis of the ICF and to amend the development of the ICF-IAF.

Methods: Gender dependent focus group interviews were done including 3-6 patients per focus group using semi-structured interviews based on the chapters of the ICF. Answers were linked to the ICF categories by two researchers. Kappa statistics was done. Saturation was defined by linking no more than 5 new categories in the interview.

Results: Over all 8 focus group interviews (f 4 / m 4) were conducted with 26 participants (f 13 / m 13). Problems (barriers) could be linked to the ICF on the 2nd ICF-Level (f 152 / m 108) as well as resources (positive influencing factors) on the 2nd ICF-Level (f 123 / m 66). Cohen’s Kappa between the two linking persons on the 2nd ICF-level was f 0.45 / m 0.58. The number of participants reached the predicted saturation.

Conclusion(s): Problems are the key component of current disease specific questionnaires. Resources seem to be an important factor from the patients’ perspective and should not be neglected in the assessment and evaluation of UI and FI. Limitations were the average age of the participants (f 70 / m 75), the participants’ previous experience with health professionals because of their incontinence, and the focus on urban population from one country in central Europe.

Implications: The results of this study will influence the consensus conference in November 2017, which will enable the dissemination of the ICF-IAF within the international community. Currently, the more than 90 translations of the ICF and the serially numbered coding system allow immediate world-wide use after the conference and will help to standardize therapy and research protocols.

Funding acknowledgements: No funding. We thank Astrid Schaemann, Markus Wirz, Madeleine Isler, Irene Koenig, Pascale Brand, and all patients for their support.

Topic: Women's & men’s pelvic health

Ethics approval: Ethics Committee of Zurich Switzerland: KEK-ZH-Nr 2015-0257, Ethics Committee of Bern Switzerland: EK BE 126/2015.


All authors, affiliations and abstracts have been published as submitted.

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