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Kossi O.1, Nindorera F.2, Batcho C.S.3, Adoukonou T.4, Penta M.1, Thonnard J.-L.1
1Université Catholique de Louvain, Institute of Neuroscience, Brussels, Belgium, 2CHU Roi Khaled, Centre National de Référence en Kinésithérapie et Réadaptation Médicale, Bujumbura, Burundi, 3Université Laval, Department of Rehabilitation, Quebec City, Canada, 4University of Parakou, Faculty of Medecine, Parakou, Benin
Background: Stroke can lead to participation restrictions mainly due to the loss of functional autonomy and to the sociocultural factors, and outcome measures with strong psychometric properties are increasingly needed in patients´ monitoring.
Purpose: To validate a stroke-specific tool for measuring participation after stroke in sub-Saharan Africa, named Participation After Stroke Scale (PASS).
Methods: This new Rasch-built measure was constructed based on stroke patients perceptions of their involvement in life situations. We recruited 276 stroke patients from 15 rehabilitation centers in Benin (West African country) and Burundi (East African country). Each patient completed an experimental 100-item questionnaire, and a random subsample of 91 subjects was given the questionnaire a second time within 2 weeks. Data were analyzed using RUMM2030 software.
Results: After successive Rasch analyses a unidimensional and linear 27-item measure of participation, was constructed. All 27 items fulfilled Rasch requirements (overall and individual item fit, category discrimination, invariance, local response independence, and non-redundancy in item difficulty).
This simple patient-based scale encompasses all the 9 domains of participation as described in the International Classification of Functioning, disability, and health (ICF). The Participation After Stroke Scale is suitable to the sub-Saharan Africa sociocultural context and showed excellent reliability.
The Person Separation Index was 0.91. The testretest reliability of item difficulty hierarchy and patient location were both excellent (r = 0.99, p=0.000).
Conclusion(s): The Participation After Stroke Scale has good psychometric qualities and provides accurate measures of participation in patients with stroke in sub-Saharan Africa.
Implications: We recommend Participation After Stroke Scale for evaluating clinical and research interventions in patients with stroke.
Funding acknowledgements: No funding.
Authors thank all participants for their helpful implication in this study.
Authors thank all participants for their helpful implication in this study.
Topic: Disability & rehabilitation
Ethics approval: The study was approved by the local ethic committees in Benin, and in Burundi
All authors, affiliations and abstracts have been published as submitted.
