DISABILITY-PERCEPTION, DISABILITY-ACCEPTABILITY AND QUALITY OF LIFE AMONG NIGERIAN STROKE SURVIVORS

Oyewole OO1, Gbiri CAO2, Ogunlana MO3
1Olabisi Onabanjo University Teaching Hospital, Physiotherapy, Sagamu, Nigeria, 2College of Medicine, University of Lagos, Physiotherapy, Lagos, Nigeria, 3Federal Medical Centre, Physiotherapy, Abeokuta, Nigeria

Background: Disability is common sequelae of stroke and its perception by the stroke survivors determine their functioning and quality of life. The mental image a stroke survivor has towards the disability resulting from stroke will determine their acceptance for community participation and improved quality of life. Efforts targeted at modulating this perception especially during rehabilitation planning and processes will determine their societal functioning and their Health-Related Quality of Life (HRQoL).

Purpose: This study assessed the influence of post-stroke disability, disability-perception and disability-acceptance on the HRQoL of Nigerian stroke survivors.

Methods: Stroke survivors were recruited consecutively from out-patient clinic of a tertiary health institution in Nigeria. Their post-stroke disability, perception of disability and disability-acceptance, and HRQoL were assessed with World Health Organization Disability Assessment Schedule, Attitudes Toward Disabled Persons Form A (ATDP-A) and SF-12 scale respectively. Descriptive statistics was used to examine the data while t-test and F-test were used to see differences in attitude and disability over HRQoL.

Results: Sixty-six stroke survivors (male= 38; 57.6%) aged 61.8±12.7 years participated in the study. Majority of the stoke survivors (98.5%) reported post-stroke disability with disability scores of 43.6. Most (72.7%) of them reported that their disability was severe. More than half of the stroke survivors (54.5%) did not accept their disability with total attitude scores of 89.5. The HRQoL of the participants were fair (46.4). The stroke survivors' attitude to stroke associated disability did not influence their HRQoL (P=0.076). However, the severity of disability reported appears to impact their HRQoL (P=0.0001). The observation remained the same when stratified by domains of HRQoL with exception of role limitation due to emotional problems. The more the severity of disability reported, the lower the HRQoL (r=-0.673; P=0.0001). Post-stroke disability and attitude to it accounted for 46% variance of HRQoL (R2= 0.460).

Conclusion(s): Although disability was very common among the stroke survivors, they had negative perception of the disability and did not accept their disability state. Post-stroke disability had negative impact on survivors' quality of life.

Implications: Efforts should be directed at integrating disability-perception and disability-acceptance and disability coping strategies into the rehabilitation programmes of stroke survivors towards a better quality of life at the end of the rehabilitation.

Keywords: Post-stroke disability, Disability-perception, Health Related Quality of Life

Funding acknowledgements: Self funded

Topic: Neurology: stroke; Disability & rehabilitation

Ethics approval required: Yes
Institution: Olabisi Onabanjo University Teaching Hospital, Sagamu, Nigeria.
Ethics committee: OOUTH Health Research Ethics Committee
Ethics number: OOUTH/HREC/40/2016


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