This study aims to explore the perspectives and needs of individuals with PD.
Five individuals with PD were selected through purposive sampling. Researchers conducted face-to-face, in-depth interviews, which were audio-recorded. The interview questions covered background information, perspectives, problems, and needs, and were validated by experts in PD and in-depth interviewing. The results were analyzed using thematic analysis.
The analysis revealed four main themes with corresponding sub-themes: (1) PD background, (2) patient perspectives on PD, (3) problems and concerns, and (4) needs and expectations. The first theme showed that most participants were aged between 70-80 years, with some having non-communicable diseases (NCDs) unrelated to PD. The second theme highlighted that patients attributed tremors, slowness of movement, stiffness, and cognitive issues to PD. They believed that regular exercise and staying active helped reduce tremors and maintain strength. The third theme centered on the fear of falling, walking difficulties, and anxiety over medication use, which were mitigated by gait aids and caregiver assistance. The fourth theme underscored the need for educational materials, such as books and videos, to help maintain physical independence, and the desire for PD to be included in national social welfare schemes.
In Thailand, PD is most common among individuals aged 70-80 years. Patients believe that PD leads to both physical and cognitive challenges, including the fear of falling, medication concerns, and anxiety. To enhance patients’ quality of life, educational materials and better social welfare coverage are needed as part of comprehensive PD care programs.
With limited PD-specific physiotherapy resources, healthcare systems should prioritize understanding patients' perspectives and goals to improve their quality of life. A deeper understanding of their condition may positively affect patients' coping mechanisms and overall well-being.
Patient perspectives
Qualitative Study
