INVESTIGATION OF THE RELATIONSHIP BETWEEN QUALITY OF LIFE, ACTIVITY-PARTICIPATION AND ENVIRONMENTAL FACTORS IN ADOLESCENTS WITH CEREBRAL PALSY

Burak M1, Kavlak E1
1Pamukkale University, School of Physical Therapy and Rehabilitation, Denizli, Turkey

Background: Cerebral Palsy (CP) describes a group of development disorders of movement and posture commonly associated with other co-morbidities (e.g., sensory, cognitive, communication). CP is the most common cause of severe physical disability in childhood. The current estimate of incidence of CP is 2 to 2.5 per 1,000 live births in developed countries. CP is associated with a heterogeneous level of disability. The assessment of those challenges in functioning is at the core of clinical practice in CP, which is multidisciplinary by natüre. Information on rehabilitation strategies for youth with CP is incomplete and fragmented. ICF-based instrument for CP, can help to systematize the use of the biopsychosocial approach endorsed by WHO in rehabilitation services for youth with CP.

Purpose: The aim of this study is to examine the relationship between quality of life, activity-participation and environmental factors in adolescents with cerebral palsy.

Methods: 75 adolescents (45 males, 30 females) ages between 14-18 (mean age: 15.52±1.60) were included in the study. Participants were divided into three groups: Level I, Level II and Level III according to the Gross Motor Function Classification System. Gross Motor Function Classification System, Gross Motor Function Measure, Functional Independence Scale, Manuel Ability Classification System, Pediatric Quality of Life Inventory and International Classification of Functioning, Disability and Health Child-Youth version Short Form (ICF-CY) (14-18 years) were used for assessment.

Results: As a result of the assessments, we found that there is a moderate and high level of association between quality of life and activity participation and body functions. We conclude that there is a moderate and high level relationship between quality of life and activity participation and body functions with the Gross Motor Function Classification System level, moderate and low level relationship with environmental factors with the Gross Motor Function Classification System level (p 0,05).

Conclusion(s): In conclusion, the fact that the ICF-CY short form used for cerebral palsied children is compatible with other assessment scales suggests that the use of ICF-CY short forms may be useful in assessing the health status of individuals.

Implications: International Classification of Functioning, Disability and Health The Child-Youth version of the Short Form offers a reliable additional option for health status and physical assessment of individuals with cerebral palsy.

Keywords: Cerebral Palsy, Quality of Life, ICF- CY

Funding acknowledgements: The authors received no financial support for the research and/or authorship of this study.

Topic: Paediatrics: cerebral palsy

Ethics approval required: Yes
Institution: Pamukkale Universty
Ethics committee: School of Medicine at the University of pamukkale
Ethics number: 10.01.2017/ 01


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