PARENTS' PERCEPTION OF THE EXTENT OF FAMILY-CENTERED EARLY INTERVENTION SERVICES FOR CHILDREN WITH MOTOR DELAYS IN TWO HOSPITALS IN TAIWAN

Hung J-H1,2, Liu W-Y2, Lin Y-H2, Liao H-F3,4, Wong AM-K5
1Taipei City Hospital, Child Developmental Assessment and Intervention Center, Taipei, Taiwan, 2Chang Gung University, Physical Therapy and Graduate Institute of Rehabilitation Sciences, College of Medicine, Taoyuan, Taiwan, 3Taiwan Association of Child Development and Early Intervention Vice President, Cerebral Palsy Association of Republic of China, Taipei, Taiwan, 4National Taiwan University, Physical Therapy, Taipei, Taiwan, 5Chang Gung Memorial Hospital, Taoyuan, Taiwan

Background: Family-centered Early Intervention (FCEI) are considered the best practice in pediatric rehabilitation. The information about parental perceptions of FCEI in Taiwan and the related factors were limited.

Purpose: To describe the parental perceptions of FCEI and its related factors for children with motor delays in hospital-based pediatric rehabilitation outpatient centers in northern Taiwan.

Methods: Fifty-two children aged 44.3 months (SD 17.5) with motor delays, their parents and 13 service providers in two hospital-based pediatric rehabilitation outpatient centers in northern Taiwan participated in this study. Parents completed the Traditional Chinese version of Measure of Processes of Care-56 (MPOC-56-TC) as a measure of parental perceptions to the extent of FCEI they received and the Chinese version of Parenting Stress Index- Short Form (PSI-SF-C) as a measure for parenting stress. Children were assessed using the Peabody Developmental Motor Scales- Second Edition (PDMS-2) for motor ability and the Comprehensive Developmental Inventory for Infants and Toddlers (CDIIT) for overall development.

Results: Among five domains of MPOC-56-TC, ´Providing General Information´ domain was the lowest and ´Respectful and Supportive Care´ domain was the highest. Parental perceptions of 'Respectful and Supportive Care' domain of the MPOC-56-TC were positively associated with children's total motor quotients of the PDMS-2 (rs=.31) and global developmental quotients of the CDIIT (rs= .37). It indicated that parents of children with milder motor or global delays might perceive more respectful and support from the FCEI services. The PSI-SF-C were inversely related to the mean scores of 'Coordinated and Comprehensive Care' and 'Respectful and Supportive Care' domains of the MPOC-56-TC (rs= -.30 and -.30 respectively). It indicated that parents with higher parenting stress might perceive less extent of the FCEI services.

Conclusion(s): Among two hospital-based FCEI programs, general information was provided least from the parents' perception. Children's developmental severity and parental stress are associated the extent of perception of FCEI by parents.

Implications: FCEI service providers can use the results of MPOC-56-TC and its associate factors to enhance the quality of FCEI and empower families.

Keywords: Motor delay, family-centered service, pediatric rehabilitation

Funding acknowledgements: This manuscript was partially supported from the Chang Gung Medical Foundation, Taiwan, ROC (CMRPD1E0191, CMRPD1E0192 and BMRP652) to Dr. Liu.

Topic: Paediatrics; Professional practice: other; Disability & rehabilitation

Ethics approval required: Yes
Institution: Chang Gung Memorial Hospital
Ethics committee: Chang Gung Medical Foundation Institutional Review Board
Ethics number: 102-5535A3


All authors, affiliations and abstracts have been published as submitted.

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