This study aims to investigate the experiences of caregivers of young children with disabilities in Cambodia, focusing on the challenges they encounter, their resilience, and the implications for policy and practice.
Convenience sampling was employed to conduct 58 surveys with caregivers of children under five with moderate to severe disabilities and a compare group. Additionally, 15 in-depth interviews were conducted with a subset of these caregivers, along with 11 key informant interviews with service providers in two Cambodian provinces. Four data collection members where recruited, trained, and implemented the survey data collection, and two members were also recruited and trained for qualitative data collection and transcription. Quantitative data underwent descriptive analyses, while qualitative data underwent thematic analyses after all transcription were completed and checked. Triangulation of the three data sources informed the conclusions drawn. National Ethics Committee for Health Research number 200 NECHR of the Ministry of Health of Cambodia on 3rd July 2023.
Caregivers encountered significant challenges, including time constraints, financial burdens, andemotional stress. Limited access to rehabilitation services for addressing mobility, feeding and communication issues, compounded by community discrimination and low participation in social protection programs, exacerbated these difficulties. Despite these hurdles, caregivers demonstrated remarkable resilience, employing effective coping strategies and maintaining high levels of self-efficacy and enjoyment in caring for their children. The study emphasized the urgent need for enhanced support, particularly through specialized rehabilitation services and access to assistive devices.
Caregivers of young children with disabilities in Cambodia face multifaceted challenges yet exhibit resilience and dedication to providing quality care. Their determination and coping strategies ensure consistent nurturing care for their children.
The findings suggest targeted interventions to address financial strain, limited-service access, and community stigma are required. Urgent improvements are needed in rehabilitation services. Policymakers and service providers should prioritize strategies to support caregiver resilience and enhance service accessibility. Efforts to improve social protection, healthcare capacity, and caregiver support services are crucial. Future studies should focus on designing interventions to enhance care for children with disabilities and their families.
Children with disabilities
Cambodia
